I can't believe that we are two weeks past this last round of chemo already.
David is doing remarkably well. His platelets gave us cause for notice this time, but so far, all we've had to do is watch them. They dipped to their lowest point yet, but hopefully since we are past the 14 day mark, they won't go down any more.
We have all had sore throats and runny noses, but so far we have been able to stay away from doctors, medications, and all that sort of thing.
David is now the proud owner of 4 pearly white teeth. He has enjoyed using them on anything small enough to get into his mouth - including his brother's and sister's fingers.
Tomorrow, we have a genetics appointment. I don't know if we will learn anything immediately. In fact, I really don't even know what to expect.
-Kim
Wednesday, January 30, 2008
Wednesday, January 16, 2008
Finished to Begin
Monday, David got his last chemo!!! We went in early that morning for the eye doc. to take some more pictures. Everything seems to be on track, so that was positive news.
The anesthisiologists at the Eye Center had trouble accessing his port. They assumed that it was blocked. The nurse at the Oncology department was able to flush the clot and access it. It acted differently than normal, but it didn't give us concern until David got very fussy and irritated. Sometime around 3pm I noticed that the front of his outfit was wet, and when I went to check what was going on, I realized that something was amiss. It happens that in moving around, the needle came out of his port, but not all the way out, so his IV fluids were running just under his skin. There was a lot of swelling all over his chest, and they had to wait for the swelling to go down before they could reaccess the port to try all over again. They also did a chest x-ray to make sure that it wasn't a problem with the port. All was fine, and we got underway sometime near 6pm. It was a long day, but we got the last treatment!!
One way that we were shown of God's love and care for us was that David's labs were taking an extremely long time to come back to the pharmacy. They will not mix his chemo until they have all the parts of the labs back. If they would have come back earlier, he would have had chemotherapy drugs leaking underneath his skin instead of just saline. This could have been very damaging. So, once again, God has protected us from what could be.
We have an appointment with the genetics people at the end of the month, and then David will have another exam in 6-8 weeks to see how the tumor responds after the chemo is out of his system. We have finished the chemo just to begin this next step of watching.
Thank you for all your prayers and generosity to our family. There is no doubt that we wouldn't have been able to survive this ordeal without the love and support of our Christian family. We love you all more than you will ever know. I'll update you more later
-Kim
David waiting for his exam
With Mommy in the Oncology waiting room
Tearing up paper with Daddy while we wait to go to the Day Hospital (where they give the chemo)
Getting chemo and drinking OJ - actually, just playing with the bottle
Finally - a nap
The anesthisiologists at the Eye Center had trouble accessing his port. They assumed that it was blocked. The nurse at the Oncology department was able to flush the clot and access it. It acted differently than normal, but it didn't give us concern until David got very fussy and irritated. Sometime around 3pm I noticed that the front of his outfit was wet, and when I went to check what was going on, I realized that something was amiss. It happens that in moving around, the needle came out of his port, but not all the way out, so his IV fluids were running just under his skin. There was a lot of swelling all over his chest, and they had to wait for the swelling to go down before they could reaccess the port to try all over again. They also did a chest x-ray to make sure that it wasn't a problem with the port. All was fine, and we got underway sometime near 6pm. It was a long day, but we got the last treatment!!
One way that we were shown of God's love and care for us was that David's labs were taking an extremely long time to come back to the pharmacy. They will not mix his chemo until they have all the parts of the labs back. If they would have come back earlier, he would have had chemotherapy drugs leaking underneath his skin instead of just saline. This could have been very damaging. So, once again, God has protected us from what could be.
We have an appointment with the genetics people at the end of the month, and then David will have another exam in 6-8 weeks to see how the tumor responds after the chemo is out of his system. We have finished the chemo just to begin this next step of watching.
Thank you for all your prayers and generosity to our family. There is no doubt that we wouldn't have been able to survive this ordeal without the love and support of our Christian family. We love you all more than you will ever know. I'll update you more later
-Kim
David waiting for his exam
With Mommy in the Oncology waiting room
Tearing up paper with Daddy while we wait to go to the Day Hospital (where they give the chemo)
Getting chemo and drinking OJ - actually, just playing with the bottle
Finally - a nap
Sunday, January 6, 2008
One Week
David's last treatment of chemo is scheduled for one week from now. Unfortunately, our whole family - including David - has caught the icky bug that has been flying around stinging people everywhere. David and the big kids all have really bad coughs and runny noses, and David also has an ear infection that he is now on antibiotics for. I am nervous that he is going to miss his chemo again.
I have been sick. Rob has only has very mild symptoms. I think that I am getting better as I have been drinking a whole lot of tea, orange juice, water, milk, and any other healthy liquidy thing I can find. This sickness seems to hang on and on and on and on.
So, that is where we are at. I am glad for the warmer temps that we are having today. We are all cabin crazy.
-Kim
I have been sick. Rob has only has very mild symptoms. I think that I am getting better as I have been drinking a whole lot of tea, orange juice, water, milk, and any other healthy liquidy thing I can find. This sickness seems to hang on and on and on and on.
So, that is where we are at. I am glad for the warmer temps that we are having today. We are all cabin crazy.
-Kim
Tuesday, January 1, 2008
New
"Oh, sing to the Lord a new song! Sing to the Lord, all the earth.
Sing to the Lord, bless His name; proclaim the good news of His salvation from day to day.
Declare His glory among the peoples."
Happy New Year!
I hope your holiday season was the best ever. Ours was wonderful. We stayed at home this year since David's counts were to be hitting their lowest around Christmas day. It was sad not being with lots of extended family, but I think this was actually a good thing for the kids. I think they needed a little more quiet, and one-on-one time with Daddy.
Rob was able to have 12 days off from work, and that was a blessing. We were able to get a few small projects done around the house, and we were able to do a lot of family stuff (aka: playing games, watching movies, playing in the yard, reading books). He goes back to work tomorrow. I think that Isaac is going to take this pretty hard since he seems to really need Rob right now.
It is only 14 days until David's last treatment of Chemo....if all goes well. We will be taking him in early (6am) for an exam by the eye doctor and then straight over to the Day Hospital for the chemo. It will be a long day, but I am glad that we get to do it all at once and get it over with. I am still unsure what the future routine will be, but I guess experience will be the best teacher.
The first thing that will happen is a genetics appointment on January 31. They will be trying to determine if David's retinoblastoma was caused by an inherited gene or if it was caused by a spontaneous gene mutation while in utero. This is important for us since each different scenario has different implications for David's future, and also for Hannah and Isaac. We are pretty sure that David's retinoblastoma was caused by a spontaneous gene mutation (which is the better scenario of the two) since we have never heard of this condition on either side of our family. But, we will have to wait and see. I think that this will probably involve genetic testing of Rob's and my blood as well as David's blood.
After that, we know that for several years, David will have to have extensive exams every 3 months.
But right now, we have one of the happiest little guys on the planet. He loves to be with the older kids, and just lights up the room with his smile. The big kids love him too! We have been spending a lot of time this holiday just being thankful for our little family and all that God has so generously blessed us with.
So, we start this year out right - with hearts full of praise to our God.
-Kim
Here are some new pictures for you.
Sunday, December 23, 2007
Christmas Eve Eve
Two days to Christmas!
So far, this has been a hard round of chemo on the little guy, but in a few days, he should be at his lowest, and then the uphill climb. He is also cutting his top teeth which makes everything seem bad.
Rob has been home since Friday, and won't have to go back until the new year, so that has been fun and a blessing. It has made the hard round of chemo a little easier on me since I have an extra pair of hands (and arms).
I hope you are all having a wonderful holiday with family and friends.
-Kim
So far, this has been a hard round of chemo on the little guy, but in a few days, he should be at his lowest, and then the uphill climb. He is also cutting his top teeth which makes everything seem bad.
Rob has been home since Friday, and won't have to go back until the new year, so that has been fun and a blessing. It has made the hard round of chemo a little easier on me since I have an extra pair of hands (and arms).
I hope you are all having a wonderful holiday with family and friends.
-Kim
Tuesday, December 18, 2007
December 18, 2007
There's only one round of chemo to go!!
We were able to get David's 5th round of chemo yesterday. As usual, he did very well. He laughed, talked, and even slept for a little bit. The chemo room was extrodinarily busy, but we were still given a private room so that Rob could be there to help me with our active little guy. It was a relief to be able to get it after our little illness from last week.
Next month will be a full one with hearing tests, Exams, and our last round of chemo. As it stands, we are scheduled for the Exam and chemo on January 14th. Hopefully, we will be well enough to get it on schedule this time.
Today, Rob and I met at Isaac's preschool to watch him perform as the "Royal Decree" in his class' Christmas play. He did a very very good job. Hannah was at school in her pajamas since it was pajama day. It's a fun time of the year!
I doubt with all the busyness of Christmas that I will get to update again soon. Hannah's last day of school is Thursday, so I will have all three kids home. Rob will have all of next week off from work, so that will be a great family time for us.
We hope that your Christmas will be merry! God bless you all.
-Kim
We were able to get David's 5th round of chemo yesterday. As usual, he did very well. He laughed, talked, and even slept for a little bit. The chemo room was extrodinarily busy, but we were still given a private room so that Rob could be there to help me with our active little guy. It was a relief to be able to get it after our little illness from last week.
Next month will be a full one with hearing tests, Exams, and our last round of chemo. As it stands, we are scheduled for the Exam and chemo on January 14th. Hopefully, we will be well enough to get it on schedule this time.
Today, Rob and I met at Isaac's preschool to watch him perform as the "Royal Decree" in his class' Christmas play. He did a very very good job. Hannah was at school in her pajamas since it was pajama day. It's a fun time of the year!
I doubt with all the busyness of Christmas that I will get to update again soon. Hannah's last day of school is Thursday, so I will have all three kids home. Rob will have all of next week off from work, so that will be a great family time for us.
We hope that your Christmas will be merry! God bless you all.
-Kim
Monday, December 10, 2007
December 10, 2007
We took David over to Duke today in hopes that he would be able to get his 5th round of chemo, but no dice. He is doing much better than he was on Thursday and Friday, but his counts are still neutrapenic, so we will have to delay until his counts are higher.
He woke up on Saturday morning feverless, and has been that way since. We were so grateful for this since his fever on Friday was pretty high. He still has a bit of wheezing and a pretty nasty cough, but it seems like he is on the mend.
The plan for now is to get his counts on Thursday, and see if he is healthy enough to get chemo on Friday. Otherwise, we will take him back on Monday and hope for the best.
I am a little disappointed. I was hoping to get his chemo today so that the end would be sooner, but I am grateful that the doctors are being cautious.
In other news, David is now crawling and sitting up on his own. He is very inquisitive, and keeps me busy trying to keep him out of places that he shouldn't be. But, he seems to be happy with his new tricks
Thanks for all your prayers. I feel like this battle with RSV has been much milder than it could have been, and we attribute that to the prayers of God's people and His abundant grace.
-Kim
He woke up on Saturday morning feverless, and has been that way since. We were so grateful for this since his fever on Friday was pretty high. He still has a bit of wheezing and a pretty nasty cough, but it seems like he is on the mend.
The plan for now is to get his counts on Thursday, and see if he is healthy enough to get chemo on Friday. Otherwise, we will take him back on Monday and hope for the best.
I am a little disappointed. I was hoping to get his chemo today so that the end would be sooner, but I am grateful that the doctors are being cautious.
In other news, David is now crawling and sitting up on his own. He is very inquisitive, and keeps me busy trying to keep him out of places that he shouldn't be. But, he seems to be happy with his new tricks
Thanks for all your prayers. I feel like this battle with RSV has been much milder than it could have been, and we attribute that to the prayers of God's people and His abundant grace.
-Kim
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