Tomorrow, I have to drive over to Duke to have a pre-op appointment before David's next Exam. Isaac will be with me, but he is usually very good for me.
The next exam is scheduled for November 9. I am more nervous about this one that I was for the last one. I don't know why that is. If everything looks good, then he will get his next round of chemo on November 12. Last time, we did both in one day, but it didn't work out that way this time. I am sad that we will have to go over and spend the better portion of two days in Durham, but, I am more grateful that we are so close to good care.
David is showing some of the more noticible side effects of his chemo: like losing his hair. I think this is a good reminder for me. It is hard to keep him away from people when he seems so healthy.
Well, I just wanted to update a little since I haven't in awhile.
-Kim
ps. You can now subscribe to this blog by putting your email address into the space provided underneath David's picture on the left of this page. Then, all my blog posts will be emailed to you each time I update!
Monday, October 29, 2007
Tuesday, October 23, 2007
October 23, 2007
A little update on the past week.
Blood counts yesterday were all good. This round, David's platelets were the ones that dipped low enough that we had to watch out, but yesterday, they were back up a little.
Yesterday was a rough one. David was very very fussy, and wasn't at all interested in napping. He was also throwing up more than normal, so I was having a time with him. He seems to be better today, though. He has had a good nap already and has kept a good portion of his feedings down. He is currently sitting in his swing spitting at me. His face looks somewhat like this.
Rob's Grandmother will be here from South Carolina this weekend. We are hoping that David will be up to a nice visit with her.
Here are some things that you might find interesting. Sorry I couldn't embed the videos, but just click on the link and you should be able to see them. I will try to figure it out and be high tech next time.
Cameras are concerning.
"I can fly!"
With Dad (video)
http://www.youtube.com/watch?v=BPgiVjaB6VE
More fun with Dad (video)
http://www.youtube.com/watch?v=kx7iB9eS6Jo
I will update again soon.
-Kim
Blood counts yesterday were all good. This round, David's platelets were the ones that dipped low enough that we had to watch out, but yesterday, they were back up a little.
Yesterday was a rough one. David was very very fussy, and wasn't at all interested in napping. He was also throwing up more than normal, so I was having a time with him. He seems to be better today, though. He has had a good nap already and has kept a good portion of his feedings down. He is currently sitting in his swing spitting at me. His face looks somewhat like this.
Rob's Grandmother will be here from South Carolina this weekend. We are hoping that David will be up to a nice visit with her.
Here are some things that you might find interesting. Sorry I couldn't embed the videos, but just click on the link and you should be able to see them. I will try to figure it out and be high tech next time.
Cameras are concerning.
"I can fly!"
With Dad (video)
http://www.youtube.com/watch?v=BPgiVjaB6VE
More fun with Dad (video)
http://www.youtube.com/watch?v=kx7iB9eS6Jo
I will update again soon.
-Kim
Wednesday, October 17, 2007
October 17, 2007
David got his 3rd round of chemo on Monday. There was not an exam this time, so we don't know what the tumor is doing at this point.
David did very well. He is getting so strong and active that we had to wrestle with him the whole time to keep him from lying on his port, but he seemed to think it was a fun game and kept a good attitude.
So far, he is not showing many side effects, but it is still early. He has a tiny little cold, but I think it is steadily getting better, so I am glad for that.
-Kim
David did very well. He is getting so strong and active that we had to wrestle with him the whole time to keep him from lying on his port, but he seemed to think it was a fun game and kept a good attitude.
So far, he is not showing many side effects, but it is still early. He has a tiny little cold, but I think it is steadily getting better, so I am glad for that.
-Kim
Tuesday, October 9, 2007
October 9, 2007
It's been awhile since I have updated you all on the progress.
Let's see.
David is cutting teeth. He has been having some fussiness with it all, and I will miss that little toothless grin that is so precious, but things must move on. Hopefully this won't last too long.
He has also started to eat some solid foods. He is rapidly approaching 16 pounds, so he is needing a little extra. He seems to do well with the cereal, but other tastes will have to be developed....he doesn't like banannas.
We are less than a week away from his next treatment. It will be on Monday, October 15 - sometime in the afternoon. As far as we know, there will be no exam before this treatment, so we will have to wait another whole month before we find out how the tumor is doing. There is some obvious lack of sight in that eye since David will cross it a lot and turns his head quite far to see things on the right side of his body. But he seems to be seeing well out of the other eye. He recognizes Rob and I, and I think he even recognizes Hannah and Isaac. I don't know what the implications of this will be for the future, but he at least has one fully functional eye for now.
Hannah and Isaac are busy growing up. Hannah is enjoying school, and Isaac is learning to function without his big sister calling the shots. Overall, it is positive.
We spent this past weekend up in Virginia celebrating my grandparent's 63 anniversary. It was a lovely time, and relaxing too. It had been so long since we had seen that part of the family, and it was great for the kids to have contact with all their grands, aunts, uncles, cousins, and etc. We also got to see the duplex where Rob lived for a year or so when he was younger, so the kids enjoyed that.
I think that is all for now. Speaking of fussy babies, I have one currently, so I should probably attend to him.
-Kim
Let's see.
David is cutting teeth. He has been having some fussiness with it all, and I will miss that little toothless grin that is so precious, but things must move on. Hopefully this won't last too long.
He has also started to eat some solid foods. He is rapidly approaching 16 pounds, so he is needing a little extra. He seems to do well with the cereal, but other tastes will have to be developed....he doesn't like banannas.
We are less than a week away from his next treatment. It will be on Monday, October 15 - sometime in the afternoon. As far as we know, there will be no exam before this treatment, so we will have to wait another whole month before we find out how the tumor is doing. There is some obvious lack of sight in that eye since David will cross it a lot and turns his head quite far to see things on the right side of his body. But he seems to be seeing well out of the other eye. He recognizes Rob and I, and I think he even recognizes Hannah and Isaac. I don't know what the implications of this will be for the future, but he at least has one fully functional eye for now.
Hannah and Isaac are busy growing up. Hannah is enjoying school, and Isaac is learning to function without his big sister calling the shots. Overall, it is positive.
We spent this past weekend up in Virginia celebrating my grandparent's 63 anniversary. It was a lovely time, and relaxing too. It had been so long since we had seen that part of the family, and it was great for the kids to have contact with all their grands, aunts, uncles, cousins, and etc. We also got to see the duplex where Rob lived for a year or so when he was younger, so the kids enjoyed that.
I think that is all for now. Speaking of fussy babies, I have one currently, so I should probably attend to him.
-Kim
Thursday, September 27, 2007
September 27, 2007
We have to start giving David shots again tonight. Unfortunately, one of his blood counts had gone down far and fast from Monday, so the doctor told us that we have to start the shots again. I hate doing this from the standpoint of making the poor guy feel badly again. Hopefully we will be able to stop them again on Monday.
Last night was not a good night for the little guy. I don't know what was going on, but he wouldn't stay asleep for long periods of time. I think maybe the little bit of a cold that he has made it harder for him to be restful. Hopefully he will sleep better tonight since the cold seems to have subsided over the day today.
Monday, I will take him in for his bloodwork, and then go right across the hallway to see his normal pediatrician. This will be fine, since we love her. She is the one that caught David's condition in the first place, so she's somewhat of a hero.
Despite everything, David has continued to grow well and be fairly happy. He is rolling over now - a trick that makes him a little frustrated. He can only roll from his back to his tummy, but not the other way around, so it makes him a little mad. Last night, he was up on all fours for a few seconds. Isaac was crawling by David's age, so I hope that's not coming too soon. David is busting out of many of his smaller items of clothing, so I have had to retire them and pull out the bigger stuff - more proof that he is growing. I think the pediatrician will be impressed on Monday!
-Kim
Last night was not a good night for the little guy. I don't know what was going on, but he wouldn't stay asleep for long periods of time. I think maybe the little bit of a cold that he has made it harder for him to be restful. Hopefully he will sleep better tonight since the cold seems to have subsided over the day today.
Monday, I will take him in for his bloodwork, and then go right across the hallway to see his normal pediatrician. This will be fine, since we love her. She is the one that caught David's condition in the first place, so she's somewhat of a hero.
Despite everything, David has continued to grow well and be fairly happy. He is rolling over now - a trick that makes him a little frustrated. He can only roll from his back to his tummy, but not the other way around, so it makes him a little mad. Last night, he was up on all fours for a few seconds. Isaac was crawling by David's age, so I hope that's not coming too soon. David is busting out of many of his smaller items of clothing, so I have had to retire them and pull out the bigger stuff - more proof that he is growing. I think the pediatrician will be impressed on Monday!
-Kim
Tuesday, September 25, 2007
September 25, 2007
David's counts were good enough yesterday for us to stop giving him his shots for this go around. I am particularly glad about that since I think much of his discomfort comes from them. He seems to be much happier already this morning, and he ate very very well.
The weekend was fun. We got to eat lunch on Sunday with my Mom and Grandmother. My mom let me borrow her carpet cleaner. My carpets look sooooooo much better. It was a long overdue cleaning!
Last night, we enjoyed some Teriyaki Chicken sent to us by someone at Rob's work. It was so nice not to have to cook since David had been somewhat more fussy this weekend.
We are all fighting colds right now....again. David is the only one that seems to not catch them very much. We are thankful for that.
-Kim
The weekend was fun. We got to eat lunch on Sunday with my Mom and Grandmother. My mom let me borrow her carpet cleaner. My carpets look sooooooo much better. It was a long overdue cleaning!
Last night, we enjoyed some Teriyaki Chicken sent to us by someone at Rob's work. It was so nice not to have to cook since David had been somewhat more fussy this weekend.
We are all fighting colds right now....again. David is the only one that seems to not catch them very much. We are thankful for that.
-Kim
Thursday, September 20, 2007
September 20, 2007
I took David in for his first blood count for this round of chemo. They came back good - very similar to the first counts after the first round. It was very soon after the first bloodwork that he started to feel pretty bad last time, so I am preparing for a few rough days.
David's normal lab tech, Kathy, was not there today. David loves Kathy, and never cries when she draws his blood (through a heel stick). He just laughs and coos at her, and she coos back. We all really love her. Today was a little rough, since the tech that was there was not as gentle. But we made it through.
So far, I think that we are managing the discomfort a little better with this round. I don't know that the pain from the shots has really begun yet since we've only given 2 shots, but some of the other symptoms seem to be more managable. David has also been sleeping really well since Monday. He has slept all the way through the night 2 nights, and then the other nights he has only gotten up once. I think being rested is helping him to deal with all the other stuff.
As you can see, we have a whole lot to be thankful for!
-Kim
David's normal lab tech, Kathy, was not there today. David loves Kathy, and never cries when she draws his blood (through a heel stick). He just laughs and coos at her, and she coos back. We all really love her. Today was a little rough, since the tech that was there was not as gentle. But we made it through.
So far, I think that we are managing the discomfort a little better with this round. I don't know that the pain from the shots has really begun yet since we've only given 2 shots, but some of the other symptoms seem to be more managable. David has also been sleeping really well since Monday. He has slept all the way through the night 2 nights, and then the other nights he has only gotten up once. I think being rested is helping him to deal with all the other stuff.
As you can see, we have a whole lot to be thankful for!
-Kim
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